跳转到主要内容

患者和公众网络

我们的网络面向对健康证据感兴趣的患者和公众

Cochrane 患者和公共网络面向任何对健康证据感兴趣并帮助产生和分享高质量证据的人。

Cochrane 患者和公共网络是一个不断发展的社区,拥有来自 100 多个国家的 2,500 多名成员。当我们说“患者和公众”时,我们指的是患者和潜在患者、护理人员、使用健康和社会护理服务的人以及代表这些群体的个人或组织。

在 Cochrane,我们相信让患者和公众参与研究对于提供与人们做出明智的健康选择相关的、可获取的、有用的和有影响力的证据至关重要。患者和公众参与是“与公众一起”或“由公众”进行的研究,而不是“针对”他们、“关于”他们或“为他们”进行的研究。

从 30 多年前一开始,我们就让患者和公众参与到我们的工作中 —— 阅读 我们让患者和公众参与到我们工作中的原则

如今,所有新的 Cochrane 评论都报告了患者和公众如何参与研究过程。Cochrane 编辑委员会包括患者和公众代表。患者和公共网络执行官与 Cochrane 密切合作,以实现年度参与目标 - 请参阅我们 与患者和公众合作的框架。我们已经签署了

为什么要加入患者和公众网络?

患者和公众网络可免费加入。加入这个社区会带来很多好处。例如,作为会员,您可以:

  • 认识像你一样的人:一个由患者和公众组成的在线社区,共同目标是制作和分享健康证据
  • 参加一系列本地和国际 Cochrane 会议和活动时享受折扣
  • 通过 Cochrane 患者和公共网络执行官申请帮助领导网络活动
  • 代表患者和公众 ,负责监督 Cochrane 评论和其他 Cochrane 图书馆内容的制作。

患者和公众还可以:

“我们参与不仅是为了拓宽研究人员的视野、关注我们的需求、防止浪费或改进研究,还因为我们有权有意义地参与关于我们的决策。”凯伦·莫利(Karen Morley),英国

我能做出什么改变?

您可以发挥至关重要的作用!您的经验和见解可以帮助确保研究提出正确的问题并产生真正改变人们生活的结果。

您不需要具备研究工作的技术知识。您的意见之所以如此独特且有价值,是因为您在医疗体系中亲身经历过。研究人员可能从教科书中了解健康挑战,但他们并不总是了解直接接受治疗或护理服务的感受。这就是你要来的地方!

人们致力健康研究的原因有很多:

  • 详细了解 您自己的健康状况、系统评价以及如何使用系统评价来做出明智的健康决策
  • 增强社交 联系
  • 培养新技能 和信心
  • 支持代表医疗保健多元化观点的研究
  • 通过对知识和系统改进做出贡献而获得目标感和赋权感
    • 支持研究人员、政策制定者和其他决策者做出更好的决策
    • 帮助推进医学知识 以改善对他人的护理
    • 塑造子孙后代的医疗保健未来

通过与研究人员合作,您可以帮助确定研究内容——关注现实世界的需求;研究开展方式——使研究更有意义;以及如何共享研究结果——从而使最需要研究的人更容易获得研究成果并有益的。

您可以在研究的任何阶段发挥重要作用。无论您是提供反馈、帮助设计研究还是分享医疗保健见解,您的声音不仅会影响研究人员,还会影响参与研究的人和使用研究结果做出健康决策的人。进一步

如何加入患者和公众网络?

填写此简短表格 以加入患者和公共网络。您需要 登录或注册一个免费的 Cochrane 帐户。我们将通过欢迎礼包、新闻通讯和定期信息与您联系。

订阅新闻

立即注册,获取面向患者和公众的每月 Cochrane 新闻。转到您的 Cochrane 帐户中的“通讯”选项卡,然后选择“Cochrane 患者和公众通讯”。注册免费的 Cochrane 帐户

联系我们

要联系 Cochrane 患者和公共网络,请参阅我们的 联系我们 页面。

Why join the Patient and Public Network?

The Patient and Public Network is free to join. Joining this community brings many benefits. For example, as a member you can:

  • meet others like you: an online community of patients and members of the public, with a shared goal of producing and sharing health evidence
  • access discounts to attend a range of local and international Cochrane meetings and events
  • apply to help lead the network's activity through the Cochrane Patient and Public Network Executive.
  • apply to represent patients and the public on Cochrane's Editorial Board, which oversees the production of Cochrane reviews and other Cochrane Library content.

Patients and members of the public can also:

"We participate not just to broaden researchers’ perspective, keep our needs in the spotlight, prevent waste or improve research, but because we have the right to be meaningfully involved in the decisions made about us." Karen Morley, UK

 

What difference could I make?

You can play a vitally important role! Your experiences and insights can help ensure that research asks the right questions and delivers results that truly make a difference to people’s lives.

You won’t be expected to have technical knowledge of how research works. What makes your input unique, and so valuable, is your lived experience with the health system. Researchers may understand health challenges from textbooks, but they don’t always understand what it’s like to navigate treatments or care services firsthand. That’s where you come in!

People contribute to health research for many reasons:

  • Learn more about your own health, systematic reviews, and how systematic reviews can be used to make informed health decisions
  • Enhance social connections
  • Develop new skills and confidence
  • Support research in representing diverse perspectives for healthcare
  • Sense of purpose and empowerment from contributing to knowledge and systemic improvements
    • Support better decisions for researchers, policymakers and other decision-makers
    • Help advance medical knowledge to improve care for others
    • Shape the future of healthcare for generations to come

You can help shape what research gets done – focusing on real-world needs; how research is carried out – making research more meaningful; and how the results are shared – so research is more accessible and beneficial for the people who need them most.

You can make a difference at any and every stage of research. Whether you’re giving feedback, helping design studies, or sharing insights on health care, your voice can influence not just researchers, but also the people who take part in research and those who use the findings to make health decisions. Learn more about our impact.

How do I join the Patient and Public Network?

To get started, simply complete this short sign-up form. Once submitted, you’ll be prompted to log in or create a free Cochrane account. After joining, you’ll receive a welcome pack, which has information about Cochrane evidence, training and opportunities to get involved.

Sign up for news

Want to stay up to date with the latest news and opportunities for patients and the public? You can opt in to receive our monthly newsletter while filling out the Patient and Public Network sign-up form. It's an easy way to stay connected and informed!

Get in touch

To contact the Cochrane Patient and Public Network, see our contact us page.

“我通过同行评价和通俗易懂的语言摘要向编辑们提供了反馈,并且经常听到他们同意并赞赏这些意见。”Brian Duncan,美国退休公共行政人员、Cochrane 患者与公共网络成员及行政人员

“由于我们参与了健康研究,现在我的亲戚、熟人以及我自己对医疗保健信息的关注度更高。” Ndi Euphrasia Ebai-Atuh,会计师,Cochrane 患者与公共网络成员及执行官,喀麦隆

  • HPV vaccination campaign: Open call for a public collaborator

    17 十月 2025

    Cochrane is seeking a public collaborator to help shape a global human papillomavirus (HPV) vaccination campaign to support families in making informed decisions about the HPV vaccine.

  • Reflections on involvement: Cochrane Canada

    14 十月 2025

    Join us behind the scenes for reflections, best practices and impact stories from author teams, Geographic Groups, and others involving patients and the public in Cochrane activities. This month we meet Dr. Robby Nieuwlaat from Cochrane Canada.

  • Community voices: meet Heidi

    22 九月 2025

    Heidi learned about Cochrane through her university coursework. Since then, Heidi has been involved in Cochrane Engage opportunities and beyond. Discover her story.

我们的Cookie使用

我们使用必要的cookie来使我们的网站工作。我们还希望设置可选的分析cookie,以帮助我们进行改进。除非您启用它们,否则我们不会设置可选的cookie。使用此工具将在您的设备上设置一个cookie来记住您的偏好。您随时可以随时通过单击每个页面页脚中的“Cookies设置”链接来更改您的Cookie首选项。
有关我们使用cookie的更多详细信息,请参阅我们的Cookies页面

接受全部
配置