Are you personally affected, concerned with, or at risk of getting COVID-19, or are you involved in the care of those who are? Complete this 10-minute survey to tell us which impacts of having COVID-19 you think are important to capture in the research being done on COVID-19. Your answers will help focus the research that is happening, which means the information that comes out of the research will be more helpful and informative to you.
Details on the survey
The survey will ask you to give your opinion on the importance of 25 outcomes (which are physical, emotional or social effects) for people with suspected or confirmed COVID-19. The survey is anonymous, and anyone can participate. Please complete the survey by 10 April 2020. All participants who complete the survey will receive a copy of the results. Once you have completed the survey please feel free to forward this email to others who may be interested.
Background on the project
The global scientific community is coming together in the fight against COVID-19 (coronavirus), with 674 COVID-19 trials registered between the beginning of January and 23 March 2020 on the World Health Organization’s (WHO) International Clinical Trials Registry Platform (ICTRP).
Evidence syntheses (where researchers look at all the studies available on one topic to assess what the evidence says overall) of these COVID-19 studies are also underway. Working with the WHO and other international stakeholders, Cochrane is building a bank of review questions, which are constantly being prioritized and refined. Frequent screening searches aim to keep the list up-to-date and reduce duplication of effort, as rapid reviews are conducted within Cochrane and across the wider community to inform health decisions during this pandemic.
To facilitate this evidence synthesis and to ensure the COVID-19 trials address the impacts of disease and treatment that are meaningful and of high priority to people affected or at risk of COVID-19, and those involved in their care, we need feedback on those affected by COVID-19 on the most important outcomes for COVID-19 research.
The COVID-19-COS project is part of the Australian Living Evidence Consortium National COVID-19 Clinical Evidence Taskforce guidelines initiative. This project aims to establish a core outcome set (which is an agreed, standardised group of outcomes to be reported by all trials within a research field) for trials in patients with confirmed or suspected COVID-19. This project is supported by Cochrane, with members of the Cochrane community involved in the COVID-19-COS Steering Committee.
Please see below for a message from the Steering Committee of this project for more details:
In response to the COVID-19 global pandemic, much research is underway to inform the care of people with suspected or confirmed COVID-19. We urgently need to know what outcomes are important to people with suspected or confirmed COVID-19, their family members, community members and health professionals. Your input will help us to rapidly develop a “core outcome set” in COVID-19. This is a list of outcomes (which are the impacts of COVID-19 or its treatment on patients) that should be reported, as a minimum, in all clinical trials in COVID-19. This will ensure that research and clinical guidelines address outcomes that are meaningful and important. This study will involve completion of two short survey rounds (10 minutes) in order to try and reach agreement among the group. You will be asked to give your opinion on the importance of 25 outcomes for people with suspected or confirmed COVID-19. The survey is anonymous, and anyone can participate. Round 1 is planned to close 10 April 2020 and all participants who complete the survey will receive a copy of the results.
Thank you so much for your participation. Once you have completed the survey please feel free to forward this email to others who you may be interested.
COVID-19-COS Steering Committee Jonathan Craig, Julian Elliott, Pedro Póvoa, John Marshall, Steve Webb, Sally Crowe, Paula Williamson, Lilia Cervantes, Tom Snelling, Yasser Sakr, Andrew Conway Morris, Ivor Douglas, Antoni Torres, Saad Nseir, Peter Horby, Luciano Azevedo, Sangeeta Mehta, Jaehee Lee, Derek Chew, Andrew Bersten, Alan Smyth, Anne McKenzie, Ella Flemyng, Tari Turner, Armando Teixeira-Pinto, Martin Howell, Allison Tong