Patient-orientated research is a participatory approach that promotes active patient engagement in health research. However, there are some communities that are generally underrepresented in patient-orientated research, such as indigenous communities. The ‘Indigenous patient partners platform project’ aimed to address the issue of the underrepresentation of Indigenous people by recruiting, orientating, engaging and supporting new Indigenous patient partners in health research in Québec, Canada.
In this webinar, which was part of the International PPI Network: Learning Live webinar series, the presenters explored the successes and learnings from this project and discussed the identified best strategies for engaging Indigenous patient partners in patient-oriented research.
The webinar was aimed at anyone interested in patient and public involvement and community engagement. It was delivered in December 2024 and below you will find the videos from the webinar, together with accompanying slides to download [PDF].
Presenter bio
Marie-Claude Tremblay is Associate Professor in the Department of Family Medicine and Emergency Medicine at Université Laval (Quebec, Canada) and a regular researcher at VITAM. She is also co-responsible for indigenous health expertise at the Québec Support Unit. In partnership with various actors, groups and organizations, Tremblay's research aims to improve the cultural safety of care for Indigenous populations, and to address the stigmatization and racism these populations experience in the healthcare system. Her research program includes projects that focus on decolonizing, participatory and community-based approaches to research, as well as patient engagement in health care, research and teaching in health sciences.
