Consumers Setting Priorities for Cochrane Review Groups

Ghersi D., Kennedy G., Rio P., Shea B., Breast Cancer CRG, HIV/AIDS CRG, Consumers & Communication CRG, Musculoskeletal CRG,

Introduction:
Objectives: To present and describe varying methods used by 4 Collaborative Review Groups (CRGs) to involve consumers in the setting of priorities within their group. To discuss the basic principles and benefits of involving consumers in priority setting.
Methods: Breast Cancer CRG: Links have been established with national and international breast cancer advocacy groups. Consumer membership of working parties ensures a consumer perspective during priority setting within target areas (eg advanced breast cancer). Some consumers are themselves undertaking reviews addressing questions generated by consumers. Almost all protocols published to date have as a minimum been peer-reviewed by a consumer. Reviewers are routinely encouraged to involve at least one consumer as a co-reviewer.
HIV/AIDS CRG: National and international AIDS advocacy groups have been involved during the inception and development of the CRG. A consumer member of the editorial team helps to direct the research agenda and consumers act as peer reviewers.
Consumers & Communication CRG: The compulsory use of a consumer participation plan by all reviewers has been implemented, to ensure that participation takes place before and during the review process and not only at the external refereeing stage. Consumer referees are compulsory at all stages of the review.
Musculoskeletal CRG (CMSG): Consumers who fit the requirements established by the Cochrane Consumer Network, particularly specific to Musculoskeletal Disorders, were identified early. The CMSG has specific roles for consumers (including membership of the editorial committee) and specifically defined evaluation strategies. An important ongoing initiative is the continued development of strategic alliances with consumer societies of the various topic subgroups within the CMSG.
Results:
Discussion: Consumer involvement in priority setting within CRGs is achievable and has numerous benefits including the production of systematic reviews addressing questions (and using outcomes) of relevance and meaning to consumers.

Rome 1999 O59